TKR out of the question when you've got PN?
Hello, fellow PN'ers!
I'm suffering a double whammy. A triple whammy? Whammy No. 1: I'm 80. Whammies Nos. 2 & 3: I have large-fiber PN – no pain, but poor balance – and a left knee that aches with arthritis. My right knee is already a TKR, so I'm familiar with the procedure. I'm doing PT for my poor balance, but much emphasis is on building leg strength. My therapist and I both recognize that the most effective exercises for rebuilding leg strength are the same exercises that aggravate my arthritic knee (e.g., squats, thrusts, sit-to-stands), so I'm relegated to "gentle" exercises. I feel my bum knee is hampering my chances of rebuilding leg strength. But at 80, with PN-related balance issues, I'm pretty sure I'm no longer an ideal candidate for a second TKR. Has anyone else found themselves at a similar crossroads? Has anyone 80 or thereabouts, with poor balance and bad knee arthritis, ever found a workable alternative to a TKR? I'm obviously on the hunt.
Ray (@ray666)
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@ray666 And tomorrow I venture into the pool at the PT's for the first time in 5 years! Wish me well!
May your and your ortho doc come out with a program, an approach, for to coming weeks and possibly months.
@joanland That’s all good news ! If I had a billion dollars I would wish for a live in Physical Therapist. Lol
I too do the above mentioned exercises. I am very familiar with plopping— I don’t trust the process-
Working with a someone trained to work with neuro clients is a special blessing. I would have had that available in Atlanta but retired to a small town in Ala about 10 years ago. Now, I struggle. Luckily, I have worked with good PTers and personal trainers at a gym for 20 years.
I’m fighting against muscle deterioration. Just trying to hold my own. I have never explored the option of someone versed in here. You have encouraged me to ask around.
My trainer at the gym works with 2 parkinson group so I do have some advantage there. As I educate her about NP she is understanding the difficulties I am running- training to avoid.
As you say. Keep sitting standing walking jumping ~ whatever we can do. Today during my class I’ll think of you.
debbieo
Very very interested in hearing your comments from your orthopedic visit today. It has been recommended -that the spacers in the RTKR. Be replaced but with caution that if they open the knee there is possibilities that it might need full replacement
I do know, if, I choose to do that, I would not be put to sleep. Deep anesthesia is not recommended if possible for the aging population. You can have a TKR without it. Your deadened and sleepy. Just not the deep deep stuff .
My other knee is -lol good knee- twingy and I do have concerns the extra recoup therapy could be the death toll - sigh.
Good luck in your visit today!
debbieo
@joanland Hi, Joan. Congrats on going nautical! I hope it goes well. Me and my doc? Well, we agreed to stay the course (injections), at least until spring, when he'll do a new top/down evaluation of my knee. I'm happy with the plan. My knee my complain from time to time, but the ache is hardly unbearable. –Ray (@ray666)
Hi, Debbie (@debbieod) I'm sorry, this will have to short. My supper is bubbling away. (I don't it's supposed to bubble.) My ortho doc and I agreed to stay the course, at least until spring. "Stay the course" means keep with the injections. (I got one today.) So we'll see. I don't think either of us was super excited about another TKR. He said he'd do one, if I said Yea! but he'd want impose lots of extra cautions for a guy of 80, living alone, with PN, and balance issues. I had to respect his position, because, honestly (?) it's my position, too. ––Ray (@ray666)
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2 Reactions@ray666 Ray. Thanks so much for the response. While I am trailing a bit behind yet— 74- the tkr thought rattles around in my brain. My recovery at 54 wasn’t so bad. It was the tibia plateau break at 50 the jimmied the whole process .
You are fortunate to have a doc willing to talk throughly with you about the pros and cons.
Both of you seem to be wise men.
The last surgeon I spoke with 3 years ago- not knee- cautioned me after age 74 he would not consider surgery on my back.
Thanks again for the quick update!
debbieo
Hi, Debbie (@debbieod) This can be such convoluted business, finding a best path through the complexities of PN. I trust my orthopdic doc. I first saw him––what? Six or seven years ago, years before I got my PN diagnosis; my sole complaint at the time was an achy left knee. I went to see him with some trepidation because his practice was (and still is) "Joint Replacement." I was certain he was going to advise another TKR. But he didn't. Studying an X-ray, he advised (what he called at the time) a "conservative approach: injections, alternating between gel and cortisone. So far, so good. Although that knee has been complaining a bit more lately, I attribute it to upping my PT game, in hopes of stalling my PT-related balance issues. As another message said, he and I will talk again in the spring about a best way forward. I'm encouraged by knowing my orthopedic doc is not scalpel crazy. 🙂
How was your Thanksgiving?
Ray (@ray666)
@ray666 Hi, Ray. Yesterday I went nautical. Great fun and excellent exercise. Working with - or against the buoyancy and against the resistance of the water. The tank had a treadmill in the bottom, a fold-down seat for seated exercises, grab bars on 3, or maybe all 4, sides. Tank was maybe 3 x 5 feet and water could come up to my armpits, and tank was full to chest high; PT-ist could raise or lower the water depth with an easy-to-operate control. Water temp was higher than I expected, but movement is quite limited so it needs to be higher than a swimming pool. Tank appeared to be plexi-glass. To enter the tank, I stepped into a side compartment, the door was locked, and it filled with water to about waist height; then the door to the main tank was opened, I stepped in, and the water in the side chamber emptied possibly into a separate steel tank where it was temperature adjusted. It was great fun and I'm going in the tank again next week! The PT-ist will get me back in the municipal pool yet (in Mobility through Water groups).
Hi, Joan (@joanland)
What I find so heartening in your message is when you say, "It was great fun and I'm going in the tank again next week!" It is so refreshing to hear from someone who is not only being pro-active about her PN but is also having such fun! When I see my PT next, I'm going to ask, "Can we have fun, too?" 🙂
Cheers!
Ray (@ray666)
@ray666 Dear Ray, And may you have much fun at PT and in all - or almost all - you do!