I have a 17 yr old son with CG. We are totally grain free, took out all additives and preservatives, and eat only organic grass fed meat. It's the GAPS protocol which is is similar to SCD that has been recommended for Crohn's patients. It's very hard to do but we finally have it down after 3 months. He is finally doing better which we are sooo excited about. PM if you would like to discuss.

Hello @nm18 - your daughter sounds a lot like me! I am 21 now and was diagnosed with CG when I was 19! I had to have 4 transfusions it blood and 2 of iron! It was crazy! I had no idea but I was jaudenice so the ER admitted me right away. Then I had an endoscopy and they found a lot of collagen. I am due for another endoscopy this June to see if anything’s changed. This might sound crazy but last summer I went vegan AND gluten free and I had never felt better. BUT after 3 months I was super light headed again and fatigued so i added meat back into my diet. Right now I am being gluten free and dairy free. I am actually haven’t quite a few stomach issues right now and feeling light headed very often- and this is eating healthy foods. Whenever I eat gluten my stomach feels ‘bubbly’ and I am tired. And dairy really upset my stomach with bloating aching and pain. Sometimes I feel CG is very similar to celiac disease. Which is a good disease to look at and somewhat follow protocol since there isn’t much to look at for CG. If your daughter wants to contact me since we are close in age / have similar experiences she / you can DM me!