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Started Repatha - Side Effects

Heart & Blood Health | Last Active: Nov 30 5:26pm | Replies (441)

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@llynch17056
Unfortunate situation. Sorry to hear about his attitude, and then the blackballing. Terrible! As I shared, I am no longer on anything. Read about a low dose Stain such as Crestor, low dose, 5Mg once per WEEK. I have NOT done this as of yet, but I am Carefully/Cautiously considering it down the road. I have no problem with the effectiveness with these medications but as we have discussed it's the side effects. I guess it is possible with such a small dose my body can tolerate it without the side effects. I won't know until I try that approach. It is an approach for people such as ourselves, that cannot tolerate the medication.
When you do the Stress test it will be scored with MET. Metabolic Equivalent Of Task, I took one in March and scored a 17.2. That's excellent score for a 68-year-old. It's an excellent score for a 20year old. I row 4 days a week on a Concept 2 rower. Good luck with everything...

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Replies to "@llynch17056 Unfortunate situation. Sorry to hear about his attitude, and then the blackballing. Terrible! As I..."

@johnjtgg, you may find this podcast valuable. It includes a background as to why initial statin trials were misleading and how that impacts both doctors and patients. I am I patient at Mayo Clinic MN and the approach described as “looking like how blood pressure is treated” resonates with me. My numbers are controlled for the first time in my life. I get Inclisiran injections twice a year and my last one actually made me feel better. Additionally, I take lower doses of drugs I’ve tried before and had said, “never again”. Keep learning!
- Mayo Clinic re: Statin Myopathy https://cardiovascularcmemayoclinic.podbean.com/e/statin-myopathy/

@llynch17056, I love how you keep pushing to figure out how to keep moving forward. I look forward to what you learn from next week’s stress test.

Have any of your doctors talked to you about finding someone specializing in statin (cholesterol drug) intollerance?

@johnjtgg thanks. I did try the lowest dose every other day. Same side effects. Statins are poison to my body, any kind, any dose. Good luck. I do yoga , all my yard work (considerable) and volunteer for a litter removal group with daily lifting, dragging, packing and walking.