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PN: From Anger to Acceptance

Neuropathy | Last Active: 4 days ago | Replies (86)

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Profile picture for jillkellyauthor @jillkellyauthor

Hi Ray. I had extremely mild neuropathy to begin with. I did an expensive and time-consuming treatment with supplements, red light therapy, and a TENS unit. It completely held it in check. Then a year ago I was visited by polymyalgia rheumatic, which rendered my shoulders not only painful but useless. I spent almost 11 months on prednisone and my PN took off, full wild fire, not only in my legs and feet and hands but all over my body. I'm now off prednisone but my feet have suffered some real damage and I accept that they may not get better. I'm back on the red light therapy and trying every snake oil on social media to keep the PN contained. That's what I hope for, that I may be able to contain it. Swimming helps a lot for both my mood and my body. I am happier if I accept that this is my aging journey. I'm no Pollyanna but resistance just stresses me more. Best of luck to you, Jill

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Replies to "Hi Ray. I had extremely mild neuropathy to begin with. I did an expensive and time-consuming..."

Hello, Jill (@jillkellyauthor)

I consider myself lucky in that my PN gives me no pain, only a John Cleese "silly walk." But even my silly walk is not that bad. I'm relegated to using a cane only once-in-a-while. Today, for example, I'll bring my cane when I go over to friends' house for a T-Day dinner, just in case their house (which I'm not that familiar with) presents a few pop-up trip hazards. My PN allowing me me to live mostly pain-free has also allowed me to take a minimalist approach to therapies. I do PT. And my neurologist has me taking two capsules daily of EB-M8 (a medicinal food; i.e., needed supplements). But that's it. No other therapies, treatments, or pills. My one PN symptom (my John Cleese walk) has not seem to progressed, for which I'm deeply, deeply grateful.

My very best to you on your PN journey!
Ray (@ray666)