@kellye5, @frank1957 @mindi @wendy2001 @mommyof6 @epvb - Thank you so much for sharing your experiences- please continue to do so. I can't express enough gratitude to all of you that go through the trauma of being ill or caring for a loved one and continue to share in this community. For all the current members here seeking comfort and support and to all the future members that are here seeking information- sharing is caring. Thank you. I find you all encouraging and the information and experiences you share here is priceless.

My son's issue has always been around fatigue. Although many doctors say it is not because of cg, my view is that it is all connected. The nutrients are not absorbed and leak into the blood stream. Our microbiome is so messed up that normal chemical reactions in the body do not work correctly. Then nutrients/minerals do not get to the parts of the body that need it. You end up with all different kinds of problems. My son had a vitamin d level of 1. No one had ever seen that. His ferritin levels don't budge. And on and on. You have to heal the gut. My belief is that it all starts in the small intestine and gut. People end up with cg or crohn's or other gastro conditions. The Mayo clinic mentions the scd diet for crohn's but you have to have someone to guide you or it is way too hard. This is the direction we are going and are working with a naturopath out of town. We skype and email. Again, this is just my view ( a Mom that can't research enough) . We'll see how it goes!

Yes thank you all for sharing! Please continue to do so. @wendy2001 I couldn’t agree more that the gut is so integral in healing this. While we discovered my daughter’s CG well before some of the horrible symptoms ( intense pain and bleeding). I know she wasn’t absorbing all her food because of her lack of growth and also fatigue. It is frustrating when Dr’s tell you it’s not related then want to send you on a rabbit trail of other tests. My advice trust your instincts and the test information you have and don’t be afraid to get second opinions. We haven’t had a follow up scope yet ( thinking about contacting Dr. Murray to see if he wants a sample for his research), but good news after 2 months on Wahl’s paleo my daughter is growing! Her energy levels seem better too. Again can’t thank you all enough for being in this group!

@buckeyeliz @wendy2001 Thank you all for always sharing experiences. 2 months after paleo and your daughter is growing. This is fantastic news. Can you confirm is/was your daughter suffering from anemia; low blood counts? has the paleo diet controlled the bleeding? Did you daughter have to be transfused due to bleeding. Does she not have to be transfused now? are her level maintaining?
sorry for the pain she feels ~ its so hard being a mom and dealing with everyday symptoms of our children.
~Jjdenaro

It seems like Walhl's Paleo and GAPS are extremely similar in their direction. GAPS might be a little more restrictive in terms of clean but I'm not sure on that. You can only have foods that are monosacharides because they are easier to break down then diosacc. GAPS is an extended version of the SCD diet and totally based on SCD. More people are familiar with SCD. In GAPS or SCD, you go down for a bit while you are starving the microbiome on sugar and yeast causing foods. My son felt sick for about 8 days but I was prepared and he lost a few pounds which he didn't have to give. However, he has already gained some back. He is soooo excited about feeling better and being able to see the light. We have only been on it for 4 weeks. It's very expensive in terms of food - only grass fed beef, etc.