Hi everyone,
I’m based in Ireland and was diagnosed with Anti-Neurofascin-155 antibody–positive CIDP (NF155+) after a very severe onset in late 2021. I had significant tremors, weakness, balance loss, and a long hospital stay. After treatment (including Rituximab in 2023–2024), I’ve been in remission since early 2025.

I still experience intentional hand tremors, balance sensitivity, fatigue, sensory overload, and some residual autonomic issues—especially after viral infections or stressful periods.

NF155+ is rare, and I would really like to connect with anyone who:
• has NF155+ (or other paranodal/nodopathy autoimmune neuropathies)
• has been through a similar recovery path
• lives in Ireland or nearby (but international connections also very welcome)
• can share experiences, long-term outcomes, or coping strategies

It would really help to hear from others going through something similar. Thanks so much