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Started Repatha - Side Effects

Heart & Blood Health | Last Active: Nov 30 5:26pm | Replies (441)

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@llynch17056

In my opinion because Repatha (Evolocumab) is relativity new, it would be impossible to know extended "long term negative effects".
Doctors are not scientists. They read the data that is provided by the pharmaceutical companies. I have been health conscious most of my life and know my body. I have never had the sensation that Repatha caused in my life. When I told my cardiologist of what I called "mood swings" (not even sure if that is an accurate description) he was baffled as this is not common. Some reports indicate Neurotransmission is affected for some individuals with low cholesterol numbers. Because my cardiologist was so perplexed by what I explained to him makes me more skeptical that no one truly knows how, what, or why long term. Or someone like me with firsthand real/live data/information (I TOOK THE MEDICATION) what better source can you have. The only thing I have been told that this is not widely reported.

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Replies to "@llynch17056 In my opinion because Repatha (Evolocumab) is relativity new, it would be impossible to know..."

@johnjtgg I agree 100%. The part I just don’t get is when you tell your doctor what you are experiencing and they don’t believe you if it’s not in the written side effects or if what you are experiencing is a much more intense side effect than what was written. I truly think it would have killed me, my decline was so intense and quick. I understand it’s a new drug and they don’t know everything about it, but then they don’t believe their patients. That was the worse part. I also have been very in touch with my body throughout my life. I am intelligent. Why wouldn’t my cardiologist treat me with understanding and compassion? I really hated how much distress he caused me.

I had a known medication expert tell me that while some side effects are more common, with strong medications, there is no predicting. Too bad he is retired now.