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Hi @wendy2001,
Naturally, the value in an online community are the public group discussions because they not only help the people actively participating in them, but also the people reading them and learning from them. But if you'd like to share more personal information, you could send @mommyof6 a private message (PM); here's how:
1. Click the member's @username.
2. Click the envelope icon in their profile.
3. Write a subject and your message.
4. Click Send Message.
I'm so glad to hear that the GAPS diet is helping your son; could you share some details about the diet? Does it eliminate many types of foods?
Replies to "Hi @wendy2001, Naturally, the value in an online community are the public group discussions because they..."
My 13 year old son was just diagnosed with CG and has missed over a month of school. It seems that there s a common thread of fatigue among these children with CG but we keep hearing from doctors that the fatigue is caused by something else which is very confusing for us. As of today we are putting our son on the GAPS which we have learned about on here and see how that goes. One of o7r biggest issues is f8nding a doctor to at least attempt to guide us in a direction and as of yet everyone seems to be pointing the finger at other directions which is becoming frustrating to say the least.
Sorry to hear about your son.
What are the symptoms your son has presented with to date?
What alerted you to take your son to Gastroenterologist?
My own symptoms have been Intermittent central chest pain since early childhood, large stomach bleeds causing vomiting, blood in stools (makes stools black), frequent hiccups and anaemia.
My fatigue is due to low haemaglobin and iron stores from stomach bleeds (both chronic and more acute).
Fatigue could also be due to poor appetite and therefore missing out on adequate nourishment. It is hard to eat when experiencing stomach pain and fullness.
I agree it is very frustrating as many Drs have not heard of CG.
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GAPS is just a tightened version of SCD which the mayo clinic mentions. You eat only monsacharide foods which break down easily. No grains or simple sugar - honey only. Lots of rules and buying clean food- pastured butter and grass fed meat is expensive.