← Return to Alternative treatments
DiscussionComment receiving replies
Replies to "Hi everyone! Im newbie here… looking for someone who could share insights on their bronchiectasis journey....."
@jmrpretz Welcome to this helpful group. Tell us a bit more about the severity of your bronchiectasis, if you have infections and your treatment. Are you treated at one of Centers of Excellence? We’ll be able to share more helpful info.
My journey-I’ve been diagnosed 3 years. I was thought to have MAC for several months, but ended up going to Mayo to get a diagnosis and plan. They did a bronchoscopy for a culture and much to their surprise, it was negative for MAC. Therefore, I haven’t been on big 3. I do airway clearance daily using Albuterol (mild asthma) then 7% saline. I’ve been on the later for a year and it was started because I’d caught everything the winter before. I also have allergies and post nasal drip/sinusitis was a big issue for me and possibly the cause of the bronchiectasis. I’m on pretty aggressive meds to control that.
It has been a year since I’ve had a sinus/ear infection or bronchitis. That’s the first year in at least 20 (as I knock on wood : ) that I haven’t been sick. I even did a slow half marathon about 3 weeks ago-first time in 8-9 years I’d been able to complete a training plan despite several attempts. I’m giving the 7%saline credit because it was the new thing, but it’s likely a combination of all.
Connect

@jmrpretz, as a long-time Bronchiectasis patient. The most important thing is to find a pulmonologist who has a lot of clinical experience with it. I was fortunate to have found one here in Atlanta.