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Collagenous Gastritis

Digestive Health | Last Active: Feb 21 5:28pm | Replies (459)

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@mommyof6

well here I am again. About 4 months into my daughter diagnosis and still nothing to help. Any one know of any doctors with some knowledge of Collagenous gastritis in the west coast??? My daughters gi seems to know nothing and keeps prescribing meds that make things worse where she loses her appetite completely or is constantly throwing up. Only thing we have found to help ease a little bit of the pain and stop the nausea is the cbd oils. We are headed to san Francisco in hopes that the head of gi there has more knowledge then our gi here in Nevada. Kinda like a second opinion. We finally got her iron anemia under control (at least for now) until her stomach bleeds it all out again (we give it about a month) but I hate seeing my child so miserable.

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Replies to "well here I am again. About 4 months into my daughter diagnosis and still nothing to..."

Hi @mommyof6, my son was diagnosed one month ago and we live in the Bay Area. We have a GI at Stanford, but we are looking to fly to Boston for their specialist. Ours has him on an elimination diet, Prilosec twice a day, and a high-dose iron supplement. He was severely anemic as well, but the oral iron allowed his body to get to a low-normal range (although his stomach still shows bleeding). I'm sorry your daughter is going through this. Please let me know if you find anyone great out here.