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@johnbishop My son and I are at Mayo waiting for our first of 4 app. for today. I cannot open the video here but look forward to watching. Thanks to this group we are here and hope for something as he continues to become more symptomatic. Thanks to you all.
Replies to "@johnbishop My son and I are at Mayo waiting for our first of 4 app. for..."
I am very interested in what Dr. Murray will recommend for you. As you may recall, I had an appointment with him in January. I would be happy to compare notes and medications and share my experiences with you when you know more. I continue to be hopeful that the medications will work for me soon. Best of luck today.
We are stressed out as about 8 more tests have been added...my son is a wreck. Would love to compare notes. Thank you all.
I would be very interested to know tests ordered so I can perhaps discuss with my Specialist Thankyou
@kellye5 I have had numerous tests over the last year and a half and I would be glad to honestly share my experiences with the tests that could benefit your son. If you want to provide me with test names I can provide you with info over a personal message. Not only have I only seen GI at mayo but I have seen many other departments there as well but none of the others have provided useful information
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HI @kellye5, thank you for the post. Hoping the Mayo doctor team will find some answers for you soon and come up with a treatment. If possible can you give us an update after the appointments are finished? I'm so happy the weather warmed up for you this week. You picked a good week for the appointments.
John