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Anyone else have Cogan's Syndrome?

Autoimmune Diseases | Last Active: Jun 30 10:10pm | Replies (11)

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I was diagnosed with Cogan’s Syndrome around seven years ago but right now I am able to maintain it (solely) due to a pulse treatment I received for something else but it seems like my body rejects any new medication we try. Does anyone else have any similar experiences with this?

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Replies to "I was diagnosed with Cogan’s Syndrome around seven years ago but right now I am able..."

@mijofe
You may like to read about it:
Cogan syndrome is a rare multisystem autoimmune disease affecting the ocular and audiovestibular system with unknown pathogenesis. It occurs mainly in young white adults in the third decade of life as they present with interstitial keratitis and hearing loss. The autoimmune hypothesis is proposed due to the detection of different autoantibodies and the association with vasculitis, polyarteritis nodosa, and collagen vascular disease.

more at: https://www.ncbi.nlm.nih.gov/books/NBK580546/.