Believe it or not, Ritalin gives him a jump. He only takes short acting which lasts 4ish hrs. Anything longer acting makes him sick. I’m treating this like an autoimmune in terms of nutrition. It took over 9 mths of change in nutrition to stop the bleeding through to the stool. Please keep me posted. I don’t know how to get notified of responses on. Other issues seem to come with this. He also has Hashimoto thyroid.

@wendy2001 Have you had your Vitamin d, magnesium, calcium, iron, b12, etc checked. At one time I had 0 vitamin d and other vitamins low. It is a hormone that helps us absorb many vitamins and minerals. Everyone is different and will have different symptoms for the same medical issues. I take a daily children's chewable vitamin.. a bit cheaper than adult and does the same. Chewable or liquid will absorb better when you have a stomach that does not work well.

Did you see my reply? Now I don’t see it?

Yes at one point his vit d was at a 1

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All good

We were told that the lack of energy and exhaustion has nothing to do with cg. Have you had your iron checked recently? Cause that can cause the lack of energy and exhaustion, and something not obvious to see without blood draws.

whenever you are sick, vomiting, nauseas, aches...that causes fatique. They will look for autoimmune. Anemia is an early sign of CG. But almost everyone presents differently. my son has chest pains, back, leg, arm numbness, fatigue, diarrhea then constipation, indigestion, throws up...and severe anxiety. This is his new life and we will keep trying new protocol as needed.

My son had single digit ferritin levels and little energy. My belief is that with collagenous gastritis, you cannot absorb nutrients so it wreaks havoc on the entire body.

My daughter has had symptoms for 5 years now but was officially diagnosed in november with cg. She has tried 5-6 different medications, gluten free, and nothing helps her. She has nausea, throwing up, body aches, iron deficiency anemia, iron infusions, light headessness, anxiety, depression, and recently started brushing easily and has bruises all up her legs, hip, and lower back. All her other tests came back negative or normal for all other autoimmune and other known diseases. But no gi doctors in our area are familiar with cg and just kinda throw their hands up in defeat. So idk what else to do. Getting to the mayo clinic is almost impossible being low income and having 6 children. So I just research, read experiences from others, and pray for some help or treatment one day.