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Hi. I have a 17 yr old son that was diagnosed with collagenous gastritis 2 yrs ago. He had no pain but totally exhausted and no energy, lots of nausea, felt sick all of the time. We went to mass general in Boston. Dr Winter is one of the only doctors that has done research on it. My son could not take steroids or supplements. Just made him sick. We have done a lot with nutrition. Going off gluten, dairy, egg, soy helped the stomach stop bleeding. Now we are doing GAPS which is similar to specific carbohydrate diet. Basically you are eating easily digestible foods. He hasn’t been able to absorb nutrients. We have also had a great psychologist. Would be happy to discuss.
Replies to "Hi. I have a 17 yr old son that was diagnosed with collagenous gastritis 2 yrs..."
@mindi, we only found bleeding because dermatology assistant thought he looked bad and asked if we had checked his stool. Sure enough - occult blood. Went to gi and had endoscopy/colonoscopy. Anemia and low iron stores. Pediatric gi gave no direction on nutrition and only gave meds which were terrible. Researched nutrition, etc on my own. Did Lon lasting fe for a while. With nutrition, finally grew.
Seems to be in same family as crohns, etc in my opinion. Just stomach va colon. Working with naturopath too.
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wendy2001 Sorry to hear about your son. In the list of symptoms you did not mention anaemia or bleeding but you say your son fatigued Did he show low iron stores and Hb at time?
If so, was he treated with iron orally or did he have iron infusion?
Change of diet may have improved his iron stores.
Thats great if his symptoms have eased with change of diet. Did the Specialist Gastroenterologist recommend gluten free?
My experience and from what have read few specialists recommend changing to gluten free.
For myself gluten free and changes to diet has not reduced symptoms especially with stomach bleeds.
But then many studies say with auto immune issues getting off gluten helps and is best.