Connect
← Return to Collagenous Gastritis
Discussion
Comment receiving replies
Hi @jng123,
Unfortunately we aren't able to give a physician's contact information on Connect, but in the meantime, I sincerely encourage you to share your concerns with the Connect community; perhaps fellow members can help answer some questions? A few have consulted or will be consulting with Dr. Murray, and I'm confident they would be happy to share their insights.
May I ask, what concerns you the most @jng123?
Replies to "Hi @jng123, Unfortunately we aren't able to give a physician's contact information on Connect, but in..."
@jng123 I am so sorry you have to go through all of that. Here, no one could recommend any one. Mayo was our best bet and only referral from our own Medical University. My son has most of the same symptoms as you are describing with chest, back pain, nausea, indigestion, bloating and food issues being prominent. Some arm pain and always cold. We are grateful to have been able to get into see Dr. Murray and his team. Call the number under digestive diseases....Good luck.
This is exactly how I feel.Daily caring for my daughter symptoms.
Jocelynne is turning 13 on friday
Anemia. Low Iron. Low protein
Never complains of stomach pain but at one point was blood transfusion dependent due to anemia and bone marrow issues
Joce is currently taking Promacta for platelets And since October 17th. When she was diagnosed by her gastro dr. Dr Sahn here in NEw York. Jocelynne takes omeprazole 40mg 1 capsule twice dailyAnd takes novaferrum125 liquid iron 5ml daily
Jocelynne is followed by her Hemotologist. And Gastrologist
And weekly visits to her Holistic Dr.
Friday is an amazing dayHappy Birthday to my fearless Jocelynne
Please all keep posting
And please send contact information. For Dr Murphy. As well as share how your success is with the visit
Very good approach
Jamilynne Denaro
What treatment did you receive from Dr Murray
Thank you @kellye5 Would you recommend trying to find a way to see Dr. Murray??? Was the trip completely helpful?
Hi Jamilynne, what is the holistic doctor doing for your daughter? I was considering getting into seeing one in the near future.
@jng123 @llg90210 My daughter is seen by I call her team of Drs. I include in this team her amazing holistic Dr. (chiropractic & nutrition) Dr Sherr. This form of treatment is to help support her overall health and nutrition and immune system
~ chiropractic adjustments. Cranial massage therapy. Nutritional supplements. Including vitamins fatty oils omega 3's
Holistic Dr,s are great because they have an addition perspective to offer.
If you are asking for exactly what she receives as a nutritional supplement. Please advise.
All is good.
Connect
As you know how frustrating this disease is trying to find a cause and treatment... I have appointments to see a hemocrat doctor, vascular doctor ontop of already seeing gastro & endocrin doctors. I just wish there was a way to know I am not wasting my time visiting these doctors & introducing the disease to them to in the end receive blank stares and no successful help. I would love to be able to get to see Dr Murray to maybe even get on the right tract for this disease if there even is one... I just feel like I am in the dark.
Symptoms: nausea, stomach aching/ sometimes severe pain & cramping & hard bloating, acid reflux, food sensitivity to really any food depending on the day, extremly swollen ankles/feet/lower legs (occurs randomly), anemia, iron deficiency, low protein (in blood).
Thank you for reading,