← Return to Meet others living with Head & Neck Cancer: Introduce yourself

Discussion
Comment receiving replies
Profile picture for William Olsen, Volunteer Mentor @hrhwilliam

@kathleenmkastrup Hello and welcome to the Head and Neck cancer group. I am certain you would rather be welcomed aboard a cruise ship or similar however this is where life has brought you today.
Most of us here are patients or former patients who have gone down the road you have recently been detoured. As this journey progresses, feel free to ask any questions you might have, start your own discussion (a great way to get specific attention to your issues), or simply gather information from other discussions you find here. This cancer journey is a difficult one. We can answer from experience, which is something most medical staff cannot do. Together, the work of your medical team and patients found here can and will get you through the weeks and months ahead. You are scared because you are wise. Sometimes in life we must surrender ourselves to hope, skill, prayer, and perhaps luck in order to continue.
For now, let's take it day to day. Do you know specifics such as Stage and Type?

Jump to this post


Replies to "@kathleenmkastrup Hello and welcome to the Head and Neck cancer group. I am certain you would..."

@hrhwilliam thank you for teaching out to me. I have such sad and mad feelings. I was diagnosed with an aggressive form of papillary thyroid cancer, i think stage 2. I need to get clarity on that

I had complained to my pcp for a year that i was having difficulty breathing and swallowing. He kept prescribing inhalers that didn’t work. He finally sent me for an ultrasound that showed cancer. He then sent me to a pulmonologist who looked at the scan and told me a tumor was pushing Against my esophagus and windpipe. HE sent me to a ENT who said it was not bad and sent me to another ENT who could do surgery sooner. He also doubted that it was cancer, saying that a biopsy i had done after diagnosis “suspicious with 25% odds of malignancy “. The 2nd ENT looked at the PET scan i had done and immediately sent me to the ED at Yale.

The drs up until this point were not from Yale.

The wonderful surgeon st Yale spent 8 hours working on me. The tumor had grown beneath my breast bone and had to be scooped out. The cancer had metastasized into lymph nodes that had to be removed. The tumor was .9

I am exhausted just writing this and crying. I am so afraid of what will happen to me and EXTREMELY angry at my pcp