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Bladder Cancer Group: Introduce yourself and connect with others
Welcome to the Bladder Cancer support group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.
Pull up a chair. Let’s start with introductions.
What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?
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Good morning @lannak. I recently had my cystoscopy which came back clean. Got my next semi-annual cysto scheduled for 6 months out. Doctor said if next cysto comes back good I will be at the 5 year mark at that point and can start doing annual cystoscopys instead of semi-annual. I also took 3 full years of BCG treatments.
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4 Reactions@talltxlady So amazing!!! Congratulations!!! Obviously you were able to tolerate the BCG treatments for 3 years. Did you have any side effects during the 3 years?
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2 Reactions@lannak absolutely, yes. Severe burning pain while holding the BCG for 2 hours, burning while urinating along with some blood sometimes 2 to 3 days after, along with fatigue and flu like symptoms and just general malaise. The burning got worse as treatments progressed. But we do what we need to do and I thank God it's working.
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@colleenyoung Hi! Overall pretty smooth recovery after 17 days. Small blood clot maybe once a day and occasional “rust” in the bathroom, especially overnight. But nothing unexpected.
Have learned that finding a good hydration level is really important. I was doing a 20-ounce water/Gatorade every two hours but was feeling like it was flooding the system a bit, so I backed it off to a bottle every three hours and that’s been a good pace for me.
At Mayo today in preparation for BCG starting in December.
Hope everyone in the US has a nice Thanksgiving!
Hi, I was diagnosed with BC 5 months ago, had 2 Turbs for total removal/resection of malignant tumors and then after 6 weeks started my treatment and just finished my 6 weeks/times BCG inductions.
Firstly was low grade pta type and then doctor said it might be intermediate type
Hi, I have had my liung cancer sorted and now moving on to have bkaðer cancer sorted.was to be BCG but whilst fixing lungs has now become muscle invasive so going for radiotherapy. Unfortunately this now on hold as found that can not empty bladder for CT scan so havingvto have treatment. What a Palaver
@jrappster, Hi Jeff. To help you prepare for your upcoming transurethral resection of bladder tumor (TURBT), you might be interested in these related discussions and ask any questions you may have:
- Bladder Tumor Scraping: What is recovery from TURBT like?https://connect.mayoclinic.org/discussion/turbt-first-time-for-husband-with-bladder-tumor/
- How soon can one fly after TURBT? What is needed for at home care?https://connect.mayoclinic.org/discussion/turbt-procedure/
My name is Charles Somervill. I've had two tumor surgeries. I decided to go ahead and take BCG after the second. I'm now scheduled to take BCG for three weeks after a three month period. Does this schedule typically go on for a lifetime?
@talltxlady
What month intervals for BCG follow-ups?