My son (10 years) and I were both diagnosed recently. Being that it's rare, it makes me wonder if there is a genetic connection, yet it could also be coincidence. Although both my doctor and my sons have been in contact with one another, neither has really given any information.

Hi @tlcollazo1230,

I noticed your earlier post, and wanted to thank you for sharing information about yourself and your son. There are so many conditions for which there seems to be no clear cure, despite ongoing medical research. Sharing your stories and experiences, not only increases awareness and spur further research, but also offers support, and helps to make sense of one's struggles.
Please continue talking and asking questions – the Connect community is listening.