@frankv
Thank you for sharing more of your story with me.
I can really relate to what you're describing. My seizures (focal ones) started in my adolescence, but I didn't get my epilepsy diagnosis until 2019, when I was 48. That's when my seizures became more frequent and severe. Focal seizures can be so quick and subtle that they easily go unnoticed by others, and sometimes they don't even show up on tests. I've heard similar stories from people who lived with focal seizures for years before finally getting answers.
There's actually an interesting interview with a doctor who went through the exact same thing. It took a decade for her to get diagnosed despite her medical training! Here's the link if you're interested:
- Despite Medical Training, A Young Doctor’s Epilepsy Goes Undiagnosed for a Decade
Cure Epilepsy