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lynn0225 avatar

Is anyone taking Xcopri?

Epilepsy & Seizures | Last Active: Mar 24 4:18pm | Replies (77)

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Profile picture for bearbayou @bearbayou

@santosha -- yes doctor knows about his fatigue. Have appt. in 2 weeks. (Just googled--again-- Xcopri side effects: fatigue is considered a 'common' side effect.) We need to practice more 'patience and resilience" as you noted. Thanks.

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Replies to "@santosha -- yes doctor knows about his fatigue. Have appt. in 2 weeks. (Just googled--again-- Xcopri..."

@bearbayou
I'm glad to know you've already reported your son's fatigue to his doctor.
Something that might be really helpful for your son is to keep a daily diary during these 2 weeks before his appointment, jotting down all the symptoms - even small ones - he's experiencing. This could give the doctor valuable insights for your son's treatment.
I did this myself for several years, recording my day with events, symptoms, difficulties, and seizures (when they occurred). It really helped me identify my main seizure triggers and gave me precise information to share with my doctor.
One piece of advice from my own experience: try not to let your son read the medication leaflet with all the possible side effects beforehand. When I started a new AED last December, I took a different approach. This time, I reported my symptoms to my husband, and he checked whether they were listed in the leaflet. This way, I avoided being influenced by all that information and could report what I was genuinely experiencing. It also helped me avoid unnecessary worry or anxiety about possible side effects.
Wishing you both a good appointment and keep in touch!
Chris