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Anyone had radiation on their central nervous system?
Lung Cancer | Last Active: Nov 25, 2025 | Replies (10)Comment receiving replies
@codym, my heart goes out to you. This is so much to carry, and I’m really sorry you’re facing all of it at once. Whole-CNS radiation is a huge step, but it’s also a step taken with the hope of buying you more time and creating space for better days ahead.
Have you had a second opinion yet? Sometimes another set of eyes can offer options or reassurance you didn’t know you needed. And do you happen to have a targetable mutation or be on a targeted therapy? I’ve seen people get real, meaningful shrinkage and stability even after tough news, so I always hold onto the possibility that treatment can still push things in the right direction.
I’ve never believed in guessing our expiration date; as Olivia Newton-John, a 30-year breast cancer survivor, said, it doesn’t serve us. What does serve us is holding on to hope, taking the next step, and letting others lift us when we need it.
Please keep hanging in. We’re all here, rooting for you, every single day.
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@flusshund Since you mentioned Olivia Newton-John, I would like to add Suzanne Somers. She had cancer when young and on the series of Three's Company. She got over that and later she ended up in the hospital. At that time they told her Cancer had spread throughout her whole body. She refused treatment and she writes in one of her books the tantrum she through, then left the hospital. Suzane lived another 16 years. When I was told I have cancer, I bought all three of her books. In them she shares what she did to stay alive and lot's of information directly from doctor's. It was encouragement to me, perhaps it would be to other's.