I'm sorry you have been feeling this way, @tvandongen !
I've had my share of frustrating experiences with doctors during my epilepsy journey too, so I completely understand why you're hesitant at this moment.
A truly good doctor won't just take what's written in your previous chart at face value. He or she will look at your actual test results, ask you questions, listen to your story, and do his or her own assessment. This doctor might even order new tests to get a clearer picture of what's going on. That's what good medical care should look like!
Please don't give up on finding appropriate and specialized care! Do you happen to have any neurologist recommendations yet, or are you still in the search phase?
Chris