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Hello! Thank you all for posting in this page. I can not tell you how helpful it is, because it doesn't seem like there is a lot of information out there. My daughter was just diagnosed with CG at 11 years of age. She really doesn't have a lot of symptoms and I'm so grateful. Seems like CG can be really painful.
She has some food sensitivities (pineapple). She was being tested because she is small for her age (7% in height and less than 1% now in weight and her bone age has not progressed in a year and is behind). Her celiac marker came back abnormal, so upon an endoscope and other labs, they have told us now she has CG and lactose intolerance. She has been taking Prilosec for about a week with no known help (although like I said no real GI symptoms most of the time). Anybody find help with acid blockers? They want to then scope her a ton in a few months (another endoscope, colonoscopy, and possible MRI). I really don't feel good about this and really would like to try some diet changes etc. Has anyone had a food emptying study done? Anyone else small in stature at this age? Any help or advice is most appreciated. 🙂 Can you tell I'm an overwhelmed mom?!
Replies to "Hello! Thank you all for posting in this page. I can not tell you how helpful..."
Thanks for sharing
Where do you buy the Aloe Vera juice and Ginger Chews ?
Whole Foods aloe Vera juice. Or amazon carried herbal answers brand. There’s two types of herbal answers brand. Both great, I prefer the aloe only one. Natural Co ops sometimes carry “gin gins”.. Amazon does too
Hi @buckeyeliz,
I'm tagging @kathyzendner and @josephkahn as they've written about the gastric emptying study; I'm certain they will have some more insight for your daughter.
@buckeyeliz, may i ask if other autoimmune conditions such as celiac disease have been ruled out?
I will be starting homeopathy next week. I will update everyone with any progress
@guaranlam How long have you been using the cbd oil? Is it a high dose? What exactly does it help with most for you? I just started a dose for my daughter and it seems to be helping a lot. But are there side effects of anything I should be aware of in the future? Any info would be helpful.
Minnesota medical, the indigo one. With regular use helps with inflammation. Other types help with the nausea.
Up to .5 ml a few times a day
Hi! Sorry just saw your reply. Yes, we have a positive IgA test for Celiac, but biopsy was inconclusive. My daughter has been g free for approx 6-8 weeks, has increased appetite and some weight gain. At New Year are going Whole 30/Paleo type diet. Hoping to get some improvement.
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Sorry for the late reply, I understand your pain here. Acid blockers didn’t and do not help. Alevera juice is very call mean in the stomach up George A. very well. It helps me with a lot of nausea and indigestion at this point. Food emptying test didn’t you get any results for me, everything was normal. I would still say I’m walking wounded, I don’t feel good pretty much every day. CBD oil helps a lot, Alove Vera juice helps, ginger chews are amazing