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Diagnosed Gleason 7(4+3) in Sept ‘23, treated with 5 Proton blasts with ADT, Firmagon (2) and Eligard(1). I really didn’t have issues with the radiation. I felt a little sensation after the first treatment but nothing major. Now with the ADT, another story. To date I am still dealing with side effects. Namely my testosterone is not returning to normal levels, which I found out is common, if I remember right us about one third of treatment subjects. What about Spaceor gel? I have also experienced some bone density loss and some other effects. Whether to have ADT is a decision that you will have to make and the side effects are serious. Research the effects and look through the correspondence on here for the related effects. To date, I am doing very well and at the last PSA check, my surgeon (he’s the one who ruled out surgery for me, but administered the shots), told me I had the lowest PSA of all the patients in the practice. Sort of a plus but do your research because there is definitely more infornation out there now than when I went thru it. I am interested in the use of estrogen patches, same effect, cheaper, safer and less side effects. No matter what you choose, your life has been changed and welcome to the club.

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Replies to "Diagnosed Gleason 7(4+3) in Sept ‘23, treated with 5 Proton blasts with ADT, Firmagon (2) and..."

@slick64
If you go over to ancan.org You can search for videos on patch trial. Richard Wassersug Has done two videos that you can watch to see how well it works. I know a few people using it instead of ADT and it works quite well for them. Some of them have been on it for many years. It is just as effective as ADT, but has fewer side effects. It’s easier on your heart, your bones and you get fewer hot flashes. It can cause breast enlargement, You could get your chest radiated to prevent that. It doesn’t happen in every case.

If you have BRCA2, you do not want to do it. He discusses that.

About 10% of people that have prostate cancer don’t produce much PSA. It can be a little confusing when it comes to testing for future issues.

If you had six months or less of ADT testosterone usually rises pretty good after 9 to 12 months.