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Is anyone taking Xcopri?

Epilepsy & Seizures | Last Active: Mar 24 4:18pm | Replies (77)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @frankv
I'm so happy for you, Frank!
Thank you for sharing this with the group. It's really encouraging for those of us still working to get our seizures under control. Hearing success stories like yours gives hope. 🙏
You mentioned your first seizure was last June and it was severe enough that you needed to be hospitalized. I imagine you had a tonic-clonic seizure (also known as a convulsion), right?
Chris

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Replies to "Hi @frankv I'm so happy for you, Frank! Thank you for sharing this with the group...."

@santosha
Chris, my hospital diagnosis was Syncope and collapse, transient alteration of awareness. I'm not sure what all that means. I'm medicating for seizures, but I don't really know any more specifics
Frank

@santosha
Chris, one other thing. I had an episode back in December 2024 when I had an emergency in the middle of the night. After lots of testing, there was no diagnosis. In hindsight, this was probably my 1st seizure event.