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'Step' requirement for meds and Tymlos
Osteoporosis & Bone Health | Last Active: Nov 25, 2025 | Replies (29)Comment receiving replies
@chrisdietrich forums like these of course suffer from massive selection bias - it's really also helpful in keeping the balance when people who tolerate these meds well report, so thanks. About 25% (a little less) of people on anabolics quit them and of those just 14% of those do so because of side effects, the rest for $$ reasons, per clinical and real life studies. I'm obsessively researching which is what I do when I'm really anxious. Better than taking to drink or political doomscrolling I guess. 🙂 One thing I like about the anabolics is that again according to studies is that almost all of the symptoms seem to be more likely to cease than with other meds if you quit. Seriously going to try to sleep now.
Replies to "@chrisdietrich forums like these of course suffer from massive selection bias - it's really also helpful..."
@beccac you are correct…the numbers are in the right territory depending where they come from and how they are interpreted…you generally don’t hear from those with no fear or issues. 😇
@beccac I have done all three anabolics after years on oral alendronate. I had a fracture after 5+ years on Fosamax. Insurance approved Tymlos and I was doing OK on it (minor side effects) but they pulled my authorization and forced me onto generic Forteo which I was not able to tolerate. I found a wonderful endocrinologist who got me approved for Evenity and I've had 7 doses so far.
With your hips as bad as they are, Tymlos or Forteo would be a good choice. The ideal treatment plan now is to start with the anabolic because the bisphosphonates can mute the response of an anabolic if taken first. This is the situation I am in now. I won't know if the anabolic therapy has worked until next year. I am hopeful but it would have been better not to have taken the bisphosphonate first.
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@beccac
Yes…The research I did said because Tymlos can raise calcium and it’s rare that it would lower it. The guidance I found said not to take more than 1000-1200mg per day. Unless your doctor (blood tests suggest it) and Don’t take it all at once.
So I figured with my two cups of weak coffee with non fat milk and oatmeal in the morning with my multivitamin (300mg calcium) I was already getting 600mg of calcium.
At lunch I took my half of 600mg (300 for those math impaired) calcium supplement…by the end of dinner I had my other 2 cups of coffee reaching 1200mg.
The hidden recommendations are don’t take or have any calcium within 2 hours of your injection. Your kidneys go into over drive and other things can cause the nausea.
It worked …I feel great this am. Doctors and the Tymlos company really should print this out for the few that do have these problems…