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jjudah avatar

Therapy for anxiety dealing with Bronchiectasis

MAC & Bronchiectasis | Last Active: Nov 25 9:21pm | Replies (18)

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Profile picture for Sue, Volunteer Mentor @sueinmn

@jjudah I too was nearly "broken" by MAC and what it did to my life. Then came Covid before I fully recovered, all while dealing with chronic pain. My primary referred me to a pain rehab clinic, which included counseling that helped me to deal with my changed life.
She helped me figure out how to accept the changes - AND more importantly, how to decide what was truly necessary to safeguard my health and at the same time have a semblance of normality.
I have figured out a routine that works for me. The biggest adjustment was to accept that some days airway clearance will be incomplete, and that's okay. The second was to learn to "let go" of trying to eradicate MAC/NTM from my environment. I keep my asthma under control, filter my water, keep my water heaters above 130f, clean my equipment after each use, but only sterilize weekly (unless in an exacerbation.) I have continued traveling, gardening, swimming (outdoors) and hanging out with the people I love. If I miss a day of airway clearance, or start to feel a "bug" coming on, I double down on airway clearance and rest for a few days. Except for during a Covid infection last year, I am exacerbation free for over 4 years, and most recently tested negative for MAC and pseudomonas in September.
This webinar by Dr Jennifer Honda may help you decide what is vital, and what you can choose to give up in terms of managing your disease:
https://connect.mayoclinic.org/discussion/overwhelmed-by-bronchiectasis-must-dos-watch-this-video/
It took me years to get to this point, but her talk validated my point of view.

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Replies to "@jjudah I too was nearly "broken" by MAC and what it did to my life. Then..."

@sueinmn can I ask did you clear the MAC without antibiotics?