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Celiac Artery Dissection (CAD)

Aortic Aneurysms | Last Active: Jan 3 9:16am | Replies (35)

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Profile picture for oic @oic

I just don't know if I can take this. The last decade or so has been filled with family passing away, mental health diagnosis, a APS diagnosis and this past week, a diagnosis of Celiac dissection. I faithfully take my mental health meds as well as my warfarin for APS. I'm frustrated with the number of dr visits everything takes a month. But this Celiac thing has me ready to give up. I have an ultrasound next week to see where we go from here. Xrays from ER visits show it's about 1.4 cm. I watch a YouTube video and the Dr. made such a large incision. It horrified me. I am homeless living in a temporary airbnb. I may have to move Jan. 1st. and can't deal with thinking about a surgery, a stomach scar that takes a few months to heal or, if no surgery that the artery will burst on its own. It carries a very high mortality rate. The Don't Do's have me afraid to move the wrong way. I have lower back issues so I'm always twisting to get comfortable. I've lost all of my goals to make myself happy.

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Replies to "I just don't know if I can take this. The last decade or so has been..."

@oic, I moved your discussion on Celiac Artery Dissection to an existing discussion you had a chance to meet a few members in:

"Celiac Artery Dissection (CAD)"
- https://connect.mayoclinic.org/discussion/cad/

Here I want to introduce you to members @chr0nicsurviv0r and @mjpisa as well as both were also diagnosed with CAD.

@oic, in addition to your diagnosis it sounds like you are dealing with a lot of other difficult circumstances. When you were diagnosed, were you given proper precautions to take in regards to movement or actions that may lead to rupture? Was surgery discussed as the only option moving forward?