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bob1955 avatar

ADT, maybe not? Anyone opted out of ADT?

Prostate Cancer | Last Active: 3 hours ago | Replies (83)

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Profile picture for duberdicus @duberdicus

It is not unusual to fear the unknown. The side effects of ADT can be nasty but if it reduces your PSA to negligible, then it is worth it. After 11 years of on and off ADT, it is no longer working. After a year of advanced ADT my PSA is still high and the doctor seems determined to continue.
I would say to give it a try. If it is too much, you can stop it. I think chemo is the second treatment of choice.

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Replies to "It is not unusual to fear the unknown. The side effects of ADT can be nasty..."

@duberdicus
A moment my ADT stopped working and my PSA started rising. I was put on Biclutamide for 1.25 years and then on Zytiga for 2.5 years.

When ADT stops working, you become castrate resistant. Media survival for somebody that is casted resistant is two years. I became castrate resistant six years ago. I’m on Nubeqa Now and it has kept me undetectable for 24 months.

Standard of care calls for being on an ARPI as soon as you become castrate resistant. Zytiga is the preferred First drug, though it is hard on the heart And causes many side effects. I have found Nubeqa To have no noticeable side effects, And since it doesn’t pass the blood brain barrier, it doesn’t cause brain fog. I know a lot of people over at ancan.org That are using Nubeqa And are very pleased with its Side effects being minimal. A number of those people are using just Nubeqa Since it works quite well, even if you have testosterone.

Just some things to be aware about and to talk to your doctor about. If you have not been offered an ARPI, it would make sense for you to find a center of excellence to get a more informed opinion about your treatment.