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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: 2 days ago | Replies (656)

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Profile picture for cherry82 @cherry82

I had cancer and went through chemo and radiation treatments. The treatments caused significant damage to my liver, bladder, and colon. Another 6 months went by and every time I ate anything my stomach caused a lot of pain. After scopes they discovered that the radiation had caused scars in my colon and it was efecting my ablility to eat anything. 2 days before I was scheduled for surgery my colon ruptured and caused immediate surgery. Since the surgery I have had neuropathy in both legs and feet to the point I can't stand anything touching them. I am on pregabalin and duloxetine. That has helped a great deal but there are many times I end up putting lidocaine all over my legs and feet. This gives enough relief that I can sleep 1 to 2 hours. I also use other products that help. The doctors here are wonderful and have really worked with me.
As far as effecting my life, I really don't go anywhere much and have limited mobility now.

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Replies to "I had cancer and went through chemo and radiation treatments. The treatments caused significant damage to..."

Welcome @cherry82, Sorry to hear that your cancer treatments started your neuropathy journey and more. It is great to hear that you have a good team of doctors that have worked with you on the treatments. You might find the following discussion helpful if you haven't seen it before:
-- Chemotherapy-induced neuropathy: What helps get rid of it?
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
The Foundation for Peripheral Neuropathy also has a list of treatments if you want to scan through them to see if any might be worth trying - https://www.foundationforpn.org/treatments/.