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DiscussionAdjusting to life with temporal arteritis
Polymyalgia Rheumatica (PMR) | Last Active: 3 days ago | Replies (271)Comment receiving replies
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@mark1952
Prednisone 15 mg daily is too low a dose for suspected GCA. The recommended starting dose is 40 mg to 60 mg, once a day, started immediately on suspicion of GCA, to be followed by a diagnostic procedure such as ultrasound or temporal artery biopsy within a few days, a week at most. The findings rapidly resolve after a week or less on treatment. Please call whoever is on call for your primary care doctor or rheumatology ASAP to discuss this.
I have had PMR for 2.5 yrs and now GCA for 2.5 months, with persistently, totally normal sedimentation rate and normal CRP. A small percentage of people with PMR and/or GCA have normal inflammatory markers. This is well documented, and unexplained by medical science. I discussed this casually with a medical expert at one point who noted that the markers could have been even lower prior to the onset of the illness, and the illness caused them to rise into the “normal” range.
Hope you feel better soon! Good luck! These illnesses are just very difficult for most all of us to deal with.