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I don't think my reply will be very helpful to anyone but here goes.

For four months I have experienced a range of symptoms that could be Giant Cell Arteritis (formerly Temporal Arteritis).

I have run the gamut from very mild, intermittent temple pain, to moderate temple pain, to stronger temple pain (always in the exact same place), to balance issues, to blurry vision. At present the pain is very mild and no other symptoms.

I went to a neurosurgeon. He said likely GCA. My ESR and CRP blood tests have always been low normal: ESR = 2-5. CRP = < 0.30/dl. Saw Opthamologist. He said GCA unlikely but possible. My PCP said the same. He started me on a week of 15 mg prednisone. I see a rheumatologist on Tuesday. Depending on how I feel with the Predisone (just started), I will probably acquiesce to a GCA biopsy at my temple. Because of the possibility of sudden irreversible blindness with GCA, I am pretty terrified. I don't think the blood tests mean that much. Opthamologist says he has seen patients with GCA and normal or lower test results. Keep advocating for yourself. Where I am in the U.S. you need to. Good Luck!

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Replies to "I don't think my reply will be very helpful to anyone but here goes. For four..."

@mark1952
Prednisone 15 mg daily is too low a dose for suspected GCA. The recommended starting dose is 40 mg to 60 mg, once a day, started immediately on suspicion of GCA, to be followed by a diagnostic procedure such as ultrasound or temporal artery biopsy within a few days, a week at most. The findings rapidly resolve after a week or less on treatment. Please call whoever is on call for your primary care doctor or rheumatology ASAP to discuss this.

I have had PMR for 2.5 yrs and now GCA for 2.5 months, with persistently, totally normal sedimentation rate and normal CRP. A small percentage of people with PMR and/or GCA have normal inflammatory markers. This is well documented, and unexplained by medical science. I discussed this casually with a medical expert at one point who noted that the markers could have been even lower prior to the onset of the illness, and the illness caused them to rise into the “normal” range.

Hope you feel better soon! Good luck! These illnesses are just very difficult for most all of us to deal with.