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Profile picture for mrmacabre @mrmacabre

@carol1024 All I know is that my levels of numbness and pain has increased over the past 10 years, and I'm not diabetic, not even close. I'm one of the lucky patients that went through every test there is to try and determine the root cause of my neuropathy, and was given a diagnosis of idiopathic poly neuropathy, no cause can be determined. So I have a hard time reading about people who's symptoms have been improved, if indeed they have been permanently.
My doctor, as well as all 4 neurologists that I saw over the course of almost 10 years have all said otherwise. It's permanent, in my case at least.

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Replies to "@carol1024 All I know is that my levels of numbness and pain has increased over the..."

@mrmacabre and I understand that. My point is that mine is caused by an outside source, chemotherapy. Yours is not and could possibly be autoimmune or something else. Once the source of the neuropathy is removed, as in chemo stopping, there's a probability the nerves start repairing themselves IF THEY AREN'T BEYOND REPAIR. I'm sorry you have no identifiable reason for your neuropathy but not all neuropathy is the same. Why don't you order some of this cream? You really have nothing to lose by trying. I know it says for oncology patients but still, you got nothing to lose by trying it.

@mrmacabre I've been dealing with idiopathic neuropathy for about 10 years also. This past year I've been using a tens machine especially made to place ones feet on. It looks like a large platter. I use it every evening for 30 minutes and it does seem to be reviving the sensation some. I also take low dose naltexone for pain in the morning and gabapentin at bed time. Nothing has been any help up until I started using the tens machine

@mrmacabre
I’ve had the same diagnosis as you; idiopathic neuropathy. The only thing the doctors figure could have caused it was the foot surgery I had years ago. I had decompression surgery and it didn’t work so I figure nothing will cure it. I use pain patches and creams. I’m very active so if I’m at a walking event I might take a tramadol for the pain. I find Motrin to work well when my toes swell but I mostly rely on pain patches. I’m not opposed to getting a spinal stimulator if the pain and discomfort interferes with my quality of life.