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← Return to New diagnosis at 50
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Thank you everyone! Jeff, I will watch those videos tonight. It’s tough, as you all know. I fully understand that I am “lucky” with my diagnosis and am as grateful as I can be with a cancer diagnosis. I understand AS protocol and believe the science, hopefully I have the bandwidth to be patient and try to live with it. As my buddy said to me, “you’re not 8 years old, no one is making this decision for you”. And that what’s tough, the decision. Damned if you do damned if you don’t. In regards to what my Dr stated about prevalence of worse cancer post removal. He stated that the commonly referenced stat of 20-30% is relatively outdated and that the study that produced those numbers had participants that already knew there GS had changed. Dunno, it’s just what he said…. Again, thank you all!!
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@mtcoastie
Another thing you could do to give you some comfort would be to both do a decipher and an Artera AI test. They will show the likelihood of you having prostate cancer recurrence if there is really a problem.
I was just speaking to somebody who has large cribriform. His Gleason is 3+4 but very low percentages. Large cribriform can be very aggressive But he’s had both the decipher test which came back very low and an Artera Ai Test, which also came very low showing that his chance of recurrence is quite low, even though he has one aggressive cribriform. He has spoken to almost every major doctor involved in prostate cancer diagnosis and they pretty much agree that he can wait and do active surveillance because the test show a very low chance of his cancer, becoming aggressive soon. He’s going to wait, Get PSA test tests regularly, Get an MRI annually, As well as a PSMA pet test. He doesn’t want to jump into something when it really isn’t necessary yet. He did get the Polaris test and found out that SBRT might not be good but IMRT is OK. This is the type of research some people go to in order to really properly evaluate their chances of the cancer being aggressive now.
My brother was on active surveillance for about six years and at 77 he finally had his PSA rise and the biopsy showed. He was a Gleason 4+3. He had SBRT radiation in three years later he’s doing fine.
Just wanted to give you some other points of view. Those videos are real useful for making decisions, however.
One other thing you could do is get a second opinion on your biopsy. There are expert doctors that can give you more information, Dr. Epstein is one of them. If you pay to have him check your biopsy, he will give you a lot of time on the phone in order to talk about what your options are. Not everyone wants to go this far, but if you are really anxious, this can give you more information to go on.
Dr. Epstein biopsy
https://advanceduropathology.com
Dr. Zhou
Send an email to Ming.zhou@mountsinai.org to inquire about a second opinion and ask for his specific instructions for the process.