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Any Briviact Side Effects?

Epilepsy & Seizures | Last Active: Nov 25 6:43am | Replies (17)

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I started taking Briviact in sept 2023 after taking Topamax, lamictal , lacosamide and I’m sure others but I can’t remember what . When I started briviact my vision started getting blurry and then I became legally blind over the next few mos . I started having blephorospasms and getting shots for those , my migraines were worse than they’d ever been and my face started getting droopy on one side . I was also so sensitive to light that I had to wear sunglasses all the time . I kept being told you’re just getting older . I’m in my 50’s . I slowly weaned myself off over a 5 week period and all the side effects are gone . My vision is back no white cane anymore , no more eye spasms , migraines barely there and no light sensitivity . And no seizures . Told the neurologist who proceeded to tell me it was all in my head . This same neurologist hasn’t seen me in person in 6 years . I don’t think they should be handing out meds that they do r know or won’t believe us about side effects .

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Replies to "I started taking Briviact in sept 2023 after taking Topamax, lamictal , lacosamide and I’m sure..."

@tvandongen
Welcome to our group at Mayo Clinic Connect!
I'm so sorry you went through all of that, and I'm honestly shocked by how you were treated. The fact that your neurologist told you it was "all in your head" after you clearly had severe side effects is deeply concerning, especially after not seeing you in person for 6 years. In my opinion, that's not acceptable medical care!
Have you considered looking for another neurologist? You deserve better care!
Chris

@tvandongen
Lacosamide made me super light sensitive - I could look at something, close my eyes, and still see it burned into my retinas. Briviact has not affected my vision as much thankfully. Congratulations for being able to get off the meds. My seizures started with Covid. There’s a lot of brain research going on - hopefully new insights.