@chasity50 I really feel your pain. For the oral I use rinse called chlorhexidine gluconate and dexamethasone. About 8 years ago my periodontist suggested I stop using toothpaste and only brush with oral b electric toothbrush. Which I did. I added the use of arm and hammer baking soda as my toothpaste. This combination helped so much that I could manage with the chlorhexidine and dexamethasome. My gums and roof of my mouth are the worse area. Oral has been under control for 5 years. Bout 1mo ago I had a flare up that was really bad but I've been diligent about care and it is getting better. Never cured just bearable. The vaginal has been unbearable for so long I'd forgotten how it felt for it to feel better. Not cured but bearable. I could not use clobetesol at all it just seem to get worse. The desoximetasone ointment that I'm using when I get up in morning and before going to bed at night. I use nothing but water to clean with my fingers. I've tried so many things. Every cream. Creams seem to make it worse. Something I discovered by trial and error trying to get some relief. I have a very soft washrag. I would get it very very warm and insert it around the vulva and hold it for 2 minutes, I would really eased the pain and swelling. I don't know if you have pain and swelling and itching but I really do when it is unbearable. The desoximetasone is the best thing I have used yet. It takes such a small amount. I put it on one side and then the other. I mean a really small amount on each side of vulva.
Hope this helps a little. I've been trying to find it this is hereditary. My mother had it, My sister has it and I have it. Some say yes some say no.