Meningioma and Psychedelic Therapy

Posted by hurryupandwait @hurryupandwait, 1 day ago

Hello everyone,
My name is Leila, and I am truly thankful to have found this community.
In August of 2025, I was diagnosed with a 3.2 cm cavernous sinus meningioma that also involves the optic canal. It was discovered unexpectedly. I had been on blood pressure medication that lowered my pulse too much, which triggered vertigo. That led to imaging, and that is how they found the tumor.
Looking back, about two years ago I would wake up with severe headaches almost every morning, but as a single mother working long hours in a demanding and stressful job, I assumed it was stress or blood pressure. My blood pressure is and has been well managed with medication, and the headaches eventually stopped, so I never thought to investigate further.
In Northern California, I was told that surgery would be too risky because of the location of the tumor and the involvement of the optic canal. Radiation was recommended. Something in me felt unsure, so I made my way to Mayo Clinic. In September of 2025, I underwent extensive testing there. I felt safe, seen, and heard, which was comforting.
Their current recommendation is to monitor rather than treat unless the tumor shows growth. I am scheduled to return in January for follow-up imaging. They also mentioned that based on its characteristics and slow-growing nature, this tumor may have been there quietly for possibly twenty years.
I feel healthy overall, and I am deeply grateful for that. But emotionally, this has been a very real journey. I am here not only to learn, but hopefully to contribute as I go through this experience.
I also have a personal question that I have not been able to find real experiences about. Before my diagnosis, I participated in professionally supervised psilocybin-assisted therapy with a licensed psychotherapist to treat depression. It helped me profoundly and brought positive change to my life. Since discovering my meningioma, I have stopped completely out of caution. When I asked at Mayo, they explained that there is simply not enough data to say whether it is safe or unsafe, which I fully understand and respect.
I am not asking for medical advice. I am only hoping to hear if anyone living with a meningioma, especially with involvement near the optic nerve or cavernous sinus, has personally used psilocybin or similar tools and whether they noticed any changes in MRI scans, symptoms, or overall well-being.
I am 56 years old, I feel well, and I know I may have lived with this tumor for many years without knowing it. I simply want to make thoughtful, informed, and emotionally healthy choices.
Thank you for welcoming me into this space. I look forward to learning from you and hopefully being able to offer support and insight to others along the way.

Warmly,
Leila

Interested in more discussions like this? Go to the Brain Tumor Support Group.

welcome to the group and i hope that as you go through your journey that
others may learn from you also.
I have a TBI and am in the support group once a month on a Tuesday at 6pm
eastern time. This is a great community to begin and possibly get the
answers you are searching for. You can call me randy. My tumor once
removed affected my peripheral vision and still does. I'm just learning to
work around it. i had a right frontal lobe tumor, one step down from a
glioblastoma. not found until it dropped me on the ground then again later
in a vehicle accident. been a long road to recover but I'm working on it.
Feel free to ask questions with this group. There is some great support.

REPLY
Profile picture for Randy Shields @randallshields56

welcome to the group and i hope that as you go through your journey that
others may learn from you also.
I have a TBI and am in the support group once a month on a Tuesday at 6pm
eastern time. This is a great community to begin and possibly get the
answers you are searching for. You can call me randy. My tumor once
removed affected my peripheral vision and still does. I'm just learning to
work around it. i had a right frontal lobe tumor, one step down from a
glioblastoma. not found until it dropped me on the ground then again later
in a vehicle accident. been a long road to recover but I'm working on it.
Feel free to ask questions with this group. There is some great support.

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@randallshields56 Thank you, Randy. I am new in the forum journey of sharing and learning, and I look forward to finding many support groups. Leila

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Profile picture for hurryupandwait @hurryupandwait

@randallshields56 Thank you, Randy. I am new in the forum journey of sharing and learning, and I look forward to finding many support groups. Leila

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@hurryupandwait you are welcome

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Profile picture for hurryupandwait @hurryupandwait

@randallshields56 Thank you, Randy. I am new in the forum journey of sharing and learning, and I look forward to finding many support groups. Leila

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@hurryupandwait
I’m in a similar situation as far as age, size of the tumor, and location. I do not have any experience with psychedelics, though my neurosurgeon recommended removing it before it started affecting my vision because it was pressing on my optic nerves they were able to get most of it, but there’s still some residual tumor that they say I will have to have radiation for at some point. It is nice to have the support group to get advice from and learn about things. I hope I’ve helped others in some small way as well.

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Profile picture for jasonl1012 @jasonl1012

@hurryupandwait
I’m in a similar situation as far as age, size of the tumor, and location. I do not have any experience with psychedelics, though my neurosurgeon recommended removing it before it started affecting my vision because it was pressing on my optic nerves they were able to get most of it, but there’s still some residual tumor that they say I will have to have radiation for at some point. It is nice to have the support group to get advice from and learn about things. I hope I’ve helped others in some small way as well.

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@jasonl1012 Thank you for sharing Jason. I'm told that mine is also pressing against the optic nerve, but they don't see any damage to my vision and it is pushing upwards towards the brain versus down towards the nerve. But I suspect eventually, there will be growth. May I ask why you decided to have surgery if it was the same size as mine? Considering they can't fully remove it due to the location, was waiting and watching not an option? Or did you do that for some time before coming to a decision to remove?

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