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Hello @jccr Nice to e-meet you here! I am Scott and first and foremost I send you my best wishes on your journey! While I do not have FTD, my mother-in-law did. I was one of her secondary caregivers and would be more than pleased to share what insights I have. Additionally I worked for the national Alzheimer's and Related Diseases Association in their research group so if I can bring anything from that experience I am happy to do so for you as well.
My MIL did not participate in any trials, but she was one of the early users of Aracept when it was new on the market. It did help her maintain her plateaus.
I send you peace and strength!
Replies to "Hello @jccr Nice to e-meet you here! I am Scott and first and foremost I send..."
Good morning @anncgrl I would think it wouldn't hurt to at least ask your husband's GP what he thinks of Aracept.
Also my wife found Seroquel to be a significant help to her as she progressed through her journey with brain cancer, which brought with it many symptoms similar to dementia.
Peace today!
Hello Scott. Thank you for your post. It is encouraging to know you are knowledgeable of FTD and sad to hear that you MIL was also affected by the disease. I have a question, did your MIL have ear ringing and pressure headaches above the eyes? I have been experiencing these new symptoms this week.
Thank you for your time.
Good morning @jccr I am aware my MIL had ringing in her ears, but a portion of her life was spent selling blasting products in the iron mines, so they sought that was the likely source, but was a guess nothing more. She did suffer from migraine headaches, but those went back to the days of her early years and followed her along, actually decreasing later in her life. However, again, the cause of the decrease was never determined. Sorry I cannot be of more help on this one!
Peace and strength!
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I have not heard about Aracept. My husband has seen some benefit from Seroquel but that has been a peripheral event as he uses it to help him sleep. His tremor in his right had has improved 95% and his walking has improved enough that I notice it. I am not sure that he is aware of either change nor would tie it back to the Seroquel. Do you recommend I discuss the Aracept with his doctor? Thanks!