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Crohn’s & PSC: Questions about medication and natural treatments
Inflammatory Bowel Disease (IBD) | Last Active: Nov 20 6:31pm | Replies (40)Comment receiving replies
@dval I was on Entyvio for 5 years for Crohn’s Disease, and I had no problem with it. It quit working though and I was hospitalized twice. After taking steroids for 3 months to get CD under control, my doctor started me on Stelara. I was on that drug for almost 2 years, and I came close to dying. Within 17-18 months I had influenza A followed closely by bibasilar bacterial pneumonia then 16 months later pneumonia in the right base of my lung. Entyvio is more gut specific and doesn’t lower immune system as much as other biologics. Stelara nearly killed me.
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@skypledger
Several years later, this is where I am… Sadly I developed antibodies to the Entyvio after 13 months of remission and the next 16 months were pure hell!! Five hospitalizations, lots of oral and IV prednisone, Stelara (which made things worse), then finally Remicade. The Remicade worked initially, then not as well, so GI doc did battle with my insurance company to get highest dose approved (despite my weight, which was 99 pounds at the time). I had scheduled a proctocolectomy and two weeks before the scheduled surgery, I stopped bleeding. So for the past 2-3 years, I have been on Remicade (every 4, now 5 weeks) and have been in remission. Therapeutic drug monitoring shows healthy trough level and antibody titers are low. So, as much as I hate being on such a powerful drug, it’s my best choice right now. We’ll see what the future holds with all the new drugs that have been approved over the past few years. I continue the whole food plant based diet, am maintaining a healthy weight (110 lbs) and am hopeful for a cure some day for ALL of us… 🙏🏻. Good luck to you!! ❤️