← Return to Anyone have Pancreatic Acinar Cell Carcinoma?

Discussion
thawk32 avatar

Anyone have Pancreatic Acinar Cell Carcinoma?

Neuroendocrine Tumors (NETs) | Last Active: Nov 27 3:08pm | Replies (24)
Comment receiving replies
Profile picture for tkr66 @tkr66

My son was diagnosed in July 2025. He has had 9 treatments. He will complete a total of 11 treatments before surgery in January. His tumor is in his stomach but begins inside the pancreas and comes out the tail. Whipple surgery is not really an option.

I am reaching out to see if other people on this forum have:
1. been diagnosed with this rare form of pancan - Acinar Cell Carcinoma
2. what treatments did you do?
3. Who has had a successful distal pancreatectomy, splenectomy, and cholecystectomy? He is scheduled to have at least a partial in January but may need a total.
4. What can we expect going forward after surgery. His hopefully will be a partial so he won't be insulin dependent going forward.

Jump to this post

Replies to "My son was diagnosed in July 2025. He has had 9 treatments. He will complete a..."
Colleen Young, Connect Director | @colleenyoung | Nov 27 3:08pm

@tkr66, I moved your questions about Pancreatic Acinar Cell Carcinoma to this existing discussion:

- Anyone have Pancreatic Acinar Cell Carcinoma? https://connect.mayoclinic.org/discussion/neuroendocrine-acinar/

I did this so you can more easily connect with other members with this type of pancreatic cancer like @lucanus @stageivsurvivor @56pan @gsterle @julieacklin @hroberts257 @kakalena and others.

You're asking great questions. You can also use the group search find answers to some of your questions about surgery.

You son is very young. It must've been shocking for both of you to hear the diagnosis of pancreatic cancer at 27 years of age. If your son would like to connect with other adults diagnosed with cancer, there is a monthly support group facilitated by Mayo Clinic that he can join (even if he is not a Mayo patient). They meet on Zoom on the first Thursday of the month. The next meeting is on Dec. 4. See more details here:
- Young Adult Cancer Support Group Meeting: Y.A. Me Too https://connect.mayoclinic.org/event/aya-adolescents-and-young-adults-support-group-meeting-y-a-me-too-1-0a38ed36/

Does your son live near you? Is he seeking care at a pancreatic cancer center of excellence? How are YOU doing?

VIEW AND REPLY