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NEC & Mixed Tumor Second Option Program available at Mayo
Neuroendocrine Tumors (NETs) | Last Active: Nov 20 12:59pm | Replies (2)Comment receiving replies
@kelseylenk, yes, you can request a second opinion with Mayo Clinic NET specialists. You can start your request here https://mayocl.in/1mtmR63
In addition to connect with members here in the NET forum, I also invite you to join December's Zoom support group on Dec 4. It is hosted by a Mayo Clinic NETs social worker and Mayo experts are frequest guests. Here's more info:
- Neuroendocrine Tumor Support Group Meeting: Zebras https://connect.mayoclinic.org/event/neuroendocrine-tumor-support-group-meeting-ne-fl-neuroendocrine-cancer-zebras-1-ee5c733d/
Kelsey, was it determined after surgery that your husband has a mixed neuroendocrine-non-neuroendocrine neoplasms (MiNENs), a rare mixed tumorscontaining both neuroendocrine (NE) and non-NE components?
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@colleenyoung – After my husband’s colon removal surgery, three of his tumors were biopsied with the following results: 1) NEC, 2) MiNEN (mixed neuroendocrine and non-neuroendocrine), and 3) Adenocarcinoma. We were informed that the mixed NE & non-NE tumor is quite rare.
We obtained pathology reports from two different healthcare systems (Corewell and University of Michigan Health). We’re not yet certain which carcinoma cells are present in his liver, but we suspect NET due to the aggressive characteristics.
Thank you for the December support group link, especially knowing that Mayo experts are frequent guests.