You are most welcome. Yes, my chemo and radiation is daily until the 20/12/25. Unless I get really really ill again and then today, the oncologist said they will either lower the dose or stop for some time, without being explicit as to what time….2 days..2 weeks? My hands and feet were looked at today, examined, the oncologist said she could see the redness in my hands and that was the radiotherapy. But the skin is not peeling yet. That’s a good thing. My vulva is exceptionally sore and has started to blister and itch like crazy. I’m waking up scratching. On examination no thrust or anything awful, no discharge, no infections, (and I shouldn’t have any) I’ve had a very solo life for 30 years now, so again the blistering and itching is a response to the radiation apparently and not the chemo. So I’ve been given a “witches brew” effectively a sorbilene mixed with a % of lidocaine, which I used for the first time tonight. It stung like crazy. ……….. to move on. During the consultation today, the oncologist said that the worse was not over. She has told me that week 4 and 5 are going to be my worse weeks. Apparently the infusions move through the bone marrow and continually circulate through out the blood. She was happy with my white cell count and liver readings, but told me that next week I should expect them to drop. If they drop too much they apparently suspend treatment for a short period of time. So I really hope u can tolerate your treatment with better dignity than I, as I feel I will not.
Writing this as I go is a little like journaling.
It does help clear my thought and I feel less lonely in being able to talk through my fears and doubt. Fears that the effort and pain won’t be worth it, doubt that the treatment will be successful, fears that the radiation burning will be too much for me, doubting my resilience to continue fighting for what might be a better life, albeit possibly a short one.
I can see that our treatment modes are very different.
Please let me know how you are In Your second week.
I no longer drink coffee. Broken a 30 year breakfast ritual. 🥲
I no longer drink milk😢 I’ve not lost weight🥲
However I’m thoroughly enjoying peppermint tea with honey and a slice of lemon. My only mixed drink once a day. Otherwise it’s water, lots of it, every day.
All the best as it can be.
Susan