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Epstein Barr and Autoimmune Study

Polymyalgia Rheumatica (PMR) | Last Active: Jan 14 11:38am | Replies (12)

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@teddyz

My medical history started after an enteric infection in my early 30's and that infection ushered in one medical problem after another. I needed 60-100 mg of Prednisone for 30+ flares of reactive arthritis/uveitis. The nice thing was remission was relatively easy to achieve and I could taper off Prednisone quickly. The reprieve of remission between flares only lasted for a few months.

My ophthalmologist prescribed the Prednisone for "aggressive uveitis flares" but I was seeing multiple specialists including a neurologist. Those nerve pain medications were too much for me and I stopped seeing all the medical specialists. I decided to treat myself with the leftover Prednisone that my ophthalmologist prescribed.

When I was 52 ... I considered PMR to be a blessing. I received so much attention when a PCP found out how much Prednisone I took during the years leading up to my PMR diagnosis. I got an immediate referral to a rheumatologist who prescribed more Prednisone. The rheumatologist said I should take Prednisone every day instead of the intermittent bursts of high doses of Prednisone I was used to.

Daily doses of 35 mg of Prednisone gave me a temporary reprieve until all the complications from chronic prednisone use happened. The good news is that I haven't needed any Prednisone for the last 5 years. I'm still being treated for multiple autoimmune disorders.

My rheumatologist said it would be impossible to adequately treat everything but one biologic is doing a good job of keeping me off Prednisone. Now my complications from decades (35 years) of Prednisone are improving. I'm counting my blessings that I survived until the age of 71.

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Replies to "@teddyz My medical history started after an enteric infection in my early 30's and that infection..."

@dadcue Hey Mike. May I ask what biologic you're on? I have PMR, been on prednisone for 11+ years. I'd love to get off it. Congrats on being off prednisone, happy life! Thank you. Ellen