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fifilacarnivali avatar

severe spinal stenosis and travel

Bones, Joints & Muscles | Last Active: 2 days ago | Replies (68)

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@gidget1280 i won’t disrupt your precious holiday time, but just wanted to say, oh i know how discouraging and upsetting it is to feel so incapacitated and in pain! it’s like, “wtf happened to me”? and it’s hard to not succumb to fear around what this might look like down the road. i’m not always strong enough to feel up to dancing, but when i can, i do! it took a year to feel confident enuf in my mobility and walking “properly”. now i’m trying to build more strength. baby steps, my friend. it’s all a big change to get your head around. be extra soft with yourself as there is loss here as well as physical pain. 🥲
always here if you want to chat. enjoy that sunshine and let it warm up all those ouchies you are feeling. 🙏🏼❤️

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Replies to "@gidget1280 i won’t disrupt your precious holiday time, but just wanted to say, oh i know..."

@fifilacarnivali oh no worries at all about the vacation. It is really helpful to me to hear this in general, but especially now being on vacation as I am almost in tears about things that I can’t do. So yours and everyone’s input has really helped to know that there is improvement down the road, but takes time and looking into many different methods and treatments.

I can’t tell you how much your words have meant with encouragement and I’m going to look into the method that someone else suggested that you said helped you and also some of the other treatments. My doctor has said that the surgery is only 50-50 for the situation that I have so it’s not something I want to do anyway, and have not been suggested by anyone really. so I am committed to doing this on non surgically and everyone’s words of encouragement helps. and especially helps to know that you have been through this too with the walking, etc., and have found ways to manage and improve.Thanks so much again and will keep you posted.