This is an old post, but came across it when searching my own health issues. If you have not been tested for H Pylori, it could literally account for almost all your symptoms. I am 58, and went down hill seemingly out of nowhere. So many autoimmune symptoms after never having any autoimmune issues, dismissed by doctors, and truly unable to function. I then developed Epstein Barr, and then had a bad (autoimmune) reaction to a medication I had taken for years, which ultimately tipped me off to the pylori infection.
It all started with prolonged constipation, gas, had stomach pain, and then burning mouth & metalic taste. A month later, got out of bed and literally hard to walk?!!? I also had skin rash, sun sensitivity, metabolic issues (weight gain), herpes reactivation. Any prior dormant illness, resurfaced as a result of this infection.
Long story short, I ordered a home antigen H Pylori test and it tested positive twice. I requested my doctor order a breath test, and it came back positive. About half the population has this H Pylori bacteria, and it stays mostly dormant, but when it acts up, it can cause inflammatory response, and autoimmune. (Researching I discovered what’s called molecular mimicry) The treatment is difficult…quad therapy for 2 weeks, (would suggest getting prescription nausea meds) and/or you could try treating w/ natural supplements. (Mastic Gum, Manukora Honey, Black Seed Oil, Probiotics, Broccoli Sprouts/Mustard Seed)
I believe the Pylori was the trigger for almost all health issues, and then became the fuel for the reactivation & continued sequencing of the Chronic Epstein Barr, herpes outbreaks, unbelievable anxiety, rashes, and the arthritis. I did the antibiotic treatment. I am 3 weeks out, and although I have some stomach issues, the inflammation is now subsiding, and arthritis, constipation, burning mouth, all much improved. Please let me know how you are doing, and if you decide to test for Pylori. You could also test for Sibo, but it sounds to me like you may have H Pylori. For some reason, with certain people, it takes off, and it can literally manifest in ways outside the gut and is often overlooked. I am still fighting with my doctors who think I am a hypochondriac, but I am 58 and have never been sick like this, and they are unfortunately mistaken. I had double pneumonia, and worked while I recovered. The worst thing was being so ill, feeling so desperate and vulnerable, and to be dismissed. I was in the business side of healthcare for my entire career, thank God I did not find the medical community intimidating. I now want to help those that are also feeling vulnerable, but may not have the same experience. Strangers on line helped me a long the way, and I hope this finds you well, and if not, offers you a path forward. You are not crazy, don’t but into anyone who tells you otherwise!! HUG
@tscribbs02 Welcome to Mayo Clinic Connect. You’ve had quite the medical journey! And now you’re well. What a trip!
If I can ask, how did you find MCC?