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Epstein Barr and Autoimmune Study
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (7)Comment receiving replies
@teddyz
When did you get EBV? I got mononucleosis when I was 13 and had a really bad case of it which included a 6+ month period of significant symptoms. I have had health issues most of my life (now in my 50s). My mom had lupus/RA/fibromyalgia, Hashimoto’s thyroiditis and heart disease/Type 2 diabetes. I haven’t been diagnosed with these diseases except for Hashimoto’s. There may be a genetic link to those who get EBV and have more significant issues with the virus.
Replies to "@teddyz When did you get EBV? I got mononucleosis when I was 13 and had a..."
@dlydailyhope I had EBV in my early/mid 40s. Some wild neurological stuff immediately after that has now resolved. Hashimoto's shortly after all of that. A little reprieve before the PMR and GCA.
The good news is that I finally got off the steroids at the beginning of September and I'm feeling good. I wake up in the morning without pain and have been able to steadily increase exercise without triggering a flare. Work still wears me out by the end of the week but I recover on Saturday.
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I too had mononucleosis at age 13. Missed school for three weeks and had extreme tiredness for almost a year. I’m 79 and in my late 50s diagnosed with Hashimoto thyroiditis, pernicious anemia and atropic gastritis- all autoimmune. I’ve had PMR for 14+ months. I’ve wondered about how autoimmune conditions cluster -