← Return to NALIRI(FOX): What side effects are you experiencing?

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Profile picture for Colleen Young, Connect Director @colleenyoung

I'm tagging fellow members like @lvtexas @starr500 @joannc63 @margaretpaluch @shivany @rosebella, who I believe have experience with NALIRI or NALIRIFOX and who can share the side effects they experienced and tips for managing them.

@gamaryanne, how are you doing? How often are your treatments?

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Replies to "I'm tagging fellow members like @lvtexas @starr500 @joannc63 @margaretpaluch @shivany @rosebella, who I believe have experience..."

@colleenyoung
I am still on it. They coupled the last infusion with a Neulasta shot-i felt awful the nezt 24 hours. Then revounded by day 6.
For those having nausea and vomiting, pls ask for better pre-meds. Ateopine is one that i get and i have never experienced vomiting. The diarrhea is real; i try to counteract it with a bit of cheese and solid food. On day 7 now-mouth sweats are gone but still have dry mouth . I counteract that vy swishing with orange juice or chick fil a lemonade! Tastes good and wakes up my mouth!
The combo of SBRT and Naliri have brought my ca19-9 down to 123 this week. Still some pain in my side occasionally. I am now taking a month of Naliri to have my umbilical hernia repaired. Hoping this is not a poor decision.

Doing it because i had an ER run due to pain. They said time to fix before anymore travel. Trip to Montaerrat planned foe end of January so i am taking their advice praying it doesnt cause my body to grow yet another tumor.