← Return to Pancreatic Cancer Group: Introduce yourself and connect with others

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Profile picture for jules1962milkshake @jules1962milkshake

Hi,my name is Julie 62 years, from Australia, I have been finding your site more interesting than the Australian sites, so I thought I would post my story on here.
I was diagnosed with PC in March 2025 after a CT for another completely unrelated pain, a 33mm adenocarcinoma tumor was found in the body of the pancreas, I was operated on 3 weeks later for a distal pancreatectomy and splenectomy, in hospital for 6 days. I then started the familiar 12 rounds of chemotherapy with folfirinox fortnightly in June 25 ,with dose reductions due to reactions from some of the drugs, I had my last round this week and am feeling more anxious and upset now than I feel when I was first diagnosed, will have scans and bloods done and see the surgeon in December 25 with results. I am now a diabetic, type 3 and am taking enzymes for digestion. I cannot say it has been the most pleasant journey but I am now on the other side and hoping and praying this horrible disease is gone, for now 🤞

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Replies to "Hi,my name is Julie 62 years, from Australia, I have been finding your site more interesting..."

Hello @jules1962milkshake and welcome to Mayo Clinic Connect. I am glad to hear that you have found this site interesting and perhaps helpful. We have many members on Connect who share their stories of pancreatic cancer. I'm glad to hear that you have completed the surgery and the chemotherapy. I understand that waiting for the first follow-up appointment can be stressful.

I want to invite some other members of this group to post with you, including @stageivsurvivor and @tomrennie.

I see that you had a distal pancreatectomy and splenectomy. We have discussion groups for members who have had these surgeries. Here are some links to those discussions:
--What's recovery like after Distal Pancreatectomy and Splenectomy?
https://connect.mayoclinic.org/discussion/recovery-after-distal-pancreatectomy-and-splenectomy/
--What are others doing about pancreatic enzyme replacement?
https://connect.mayoclinic.org/discussion/pancreatic-enzyme-replacement/
How are you feeling post-surgery? Are you able to eat comfortably, or do you have any digestive problems?