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Bladder Cancer | Last Active: Dec 31, 2025 | Replies (12)
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Thanks for your reply! I asked about Blue Light and he said, “we don’t do that here”. It’s the University affiliated hospital, btw 🙄 No cytology, no further imaging ordered. I’m making calls now to try to get a second opinion. I see hematologist tomorrow (all this bleeding has made my iron tank). Can I ask her to order anything?
Replies to "Thanks for your reply! I asked about Blue Light and he said, “we don’t do that..."
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@nifty50co
I realize your last post was in November, so hopefully you have gotten someone to take you seriously and try to figure it out.
Very recently, I saw that there was a medication that could help with chemo brain - unrelated of course. However, the idea of trying to get answers/treatment is what has inspired me to write to you. I had never heard of "advocates" before, but there are professionals who perform the role of advocate and it is their job to advocate for you - organize treatment, etc. I understand it is covered by medicare and hopefully some other insurance.
If you cannot get anyone to take your problem seriously, perhaps trying to work with an advocate would help. I am about to find out soon, for myself.
Good luck. You seem to know that advocating for yourself is important, if not very frustrating!