@peterose
Hi, I have been in and out of the ER with diverticulosis and diverticulitis (complicated) for close to 2 years now. I saw a GI specialist who scoped one end to the other, ran labs and tests. Everything looked 'good', though I did show as having NAFL (non alcoholic fatty liver). and of course my diverticulosis are always there. He told me to not take NSAIDS (which I don't), and to 'lose a few pounds'. I was set up with a nutritionist to keep tabs on foods that could flare my diver, and also calm inflammation (had a blood test that showed foods I need to stay away from to keep inflammation down). Since then, I still have felt like I have chronic inflammation and in the last 8 months my whole stomach area has not felt right. Sometimes it is just an underlying feeling and sometimes outright pain (can't walk upright). Because it became more of my whole stomach, and not just lower left (diver), I became concerned. I went into the ER in Sept to check for appendicitis or kidney stones (pain started to be felt in my upper/mid back area at it's worst). In the ER they gave me a CT scan (second one in 8 months), and shared I did not have appendix issues or stones, but that my 'Mesenteric Panniculitis' was still there (radiologist compared my two CT scans) and suggested I speak to my GP. She shared it's a rare condition and only has had one patient with it. She then referred me to a new GI doctor (felt totally dismissed by the first GI doc). My new GI doc put me on a round of prednisone and referred me to Mayo in Scottsdale AZ. Hoping after they review my records (this week - fingers crossed), they will set up a consult maybe next month. I have been doing as much research as I can since this seems to be not a well understood condition. So far my labs don't show as having autoimmune (Sjogren's is often association with MP) and I don't show signs of lymphoma (though in my reading it seems as if a biopsy is really the only way to rule out lymphoma issues). I've also read a round of steroids can take care of it or sometimes it can just go away on its own. I am 61 and very proactive with my health, and am trying to focus on exercise, healthy eating and stress. management, but don't want to miss anything.
How long have. you been dealing with MP?