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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 1 day ago | Replies (351)Comment receiving replies
@loribmt
Good morning Lori !! Thank you for such a thorough and thoughtful response. I read it several times , read the WEB MD ARTICLE ALSO .
When I READ INFORMATION ON WEB SITES , I sort through it , I also compare with accurate publication like MAYO AND NIH !
I was TOLD ! I have less than two years to live ! My husband was present ! I am am BELIEVER AND WILL LEAVE THAT DECISION TO MY LORD !
I am OPEN TO GET ANOTHER OPINION , and I am researching who the most experienced physicians are, anywhere in the country,
I am encouraged, and NOT GIVING UP , will take OJJARA BEFORE GIVING UP ON IT !
Doing What I should do and read and learn how to best take care of myself!!
Unfortunately, I do not recall that my physician nor his PA INFORMED ME OF THE PROBABLE, serious side effects!! Now I know, also , understand what my CBC RESULTS MEAN !!
My DRIVING FORCE TO CONTINUE TO BATTLE THIS , are my precious grandsons ! Besides, my house is not in order , nor are my finances 💰🙏
I need at least five years !!
AS OTHERS ON THIS SITE , I am GREATFULL FOR YOUR TIME AND OTHER VOLUNTEERS! Who share their experiences!!
HAPPY THANKSGIVING TO ALL! Sincerely HANYA
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@hanya You are always such a bright spirit, Hanya! Your positivity is golden and as I’ve seen in my own life, it can be the driving force behind our survival! ☺️
Oh my gosh, I know it’s not funny but I couldn’t help chuckle with your comment about ‘your house and finances not being in order’…needing more time! Is there EVER enough time??? I’ve been through that myself. I’d always thought I was ‘fairly’ organized until leukemia hit out of the blue for me! Boom! Was in the hospital for 5 weeks the first time, with no certainty that I would return home.
My husband and I always had a tacit division of labor. He had his jobs and I had mine. Along with household issues, I also paid bills, fortunately through online checking. But husband had no clue of the utility accounts, passwords, etc. So here I was, plugged into my chemo in a hospital bed with my iPad, opening a new email account for bills only, so that my husband got the notifications, when to pay, etc. We are both organized in our own right, but when it came to merging our ‘jobs’ it was obvious we had a lot of work to do. I believe we are now better organized to the point where we’ve made it easier for our daughter to find pertinent paperwork/financials. But our house…le sigh…no matter how hard I try there is always excess somewhere!
When we’re not feeling well, the last thing we want to focus on is cleaning and prepping for the end. We should be enjoying our time on the planet! So whatever you feel you need to do, mete it out…set a timer and only do so much work at a time, devoting the rest of the day to focus on essentials and joyful moments.
Now, for that 2nd opinion on your health…if you’d like to make an appointment with Mayo Clinic, here’s a link to get you started!
http://mayocl.in/1mtmR63
There are 3 Mayo Clinic Campuses. Rochester, MN
Phoenix, AZ and Jacksonville, FL. They all have impressive hematology departments. I wouldn’t be here today without the amazing care I received in Rochester. So of course I’m a little biased. ☺️
Happy Thanksgiving to you and your family, Hanya. Hugs.